Road trip

Yesterday, Olivia & I packed Annie up in the van and drove to Portland to bring Andy home from school for the summer. But before we got too far down the road, we made a pit stop to see Annie's neurologist for a regularly scheduled check-up. It was nice to surprise him with an alert and happy Annie, and to have Miss Pam--my favorite neuro/mito nurse assist him at our appointment.

He had some good news for us: there's a new seizure med in town, Banzel, that is specifically effective against drop seizures, which is the kind Annie has. So the plan is to wean up on that, and if it shows to be helpful for Annie, we'll begin weaning off of the Zonisimide that she's on, which is cognitively blunting. Eventually, we may be able to also wean her off of the Keppra, and just have the Lamictal/Banzel combo. And, yes, we do run a pharmacy at our house.

So what kind of Annie do you think we'll have if we can get her off of some seizure meds that fog up her thinking? I remember that we put her on the Zonisimide in May of 2007, right when it seemed like she was beginning to talk after the brain injury. Wouldn't that be cool if getting off of it helped her put her thoughts together enough to say, "I love you MOMMY"??? Just wondering...

Anyway--it's good to have Andy back under our roof, and nice to have sunshine out the window this morning. We have lots to be thankful for and now, something more to look forward to.

Jean

It is good to give thanks to the LORD, and to sing praises to Your name, O Most High; To declare Your lovingkindness in the morning, and Your faithfulness every night. Psalm 92:1-2