Sizzling in Seattle

Today was 89, tomorrow 100. I'm meeelllllting. I sent Bill down to Lowe's this evening to get a couple of oscillating fans. A couple was all they had left, so we lucked out. Miss Cindy gave us a portable swamp cooler and it works great--but we needed a couple of fans to spread the cooler air around. I know you guys in the midwest and south think we're wimps. Wimps we are.

Thanks for the movie reviews. My kids gave it two thumbs up, but thought the music was lame. Next time will be a silent movie with subtitles.

Back to Annie. She learned to do a few new things the last couple of days. She began using a sippy cup to sip water, and actually sipped rather than bit the mouthpiece. We gave her a taste of the formula she gets through the g-tube, but she preferred plain water. Using a cup, though, is a major accomplishment. Plus, she anticipated the cup coming up to her face and opened her mouth--intentional, purposeful and anticipatory movement.

Today she pushed the peanut exercise ball with both hands and arms with definite resistance to Beth, her OT. AND she grabbed a toy with her right hand. Remember, the right hand has been much weaker than the left, but is really making some nice progress.

She seems more engaged with what is going on around her, and is expressing likes and dislikes consistently. I WANT to stand up, I don't WANT to sit down anymore! I don't WANT to rock in the rocking chair, I WANT to go to bed! I WANT water, I don't WANT formula! She may be nonverbal, but she IS communicating loud and clear.

So--no more obvious seizure activity, and good gains these last couple of days. In spite of the heat!

Jean


It is good to give thanks to the LORD,
And to sing praises to Your name, O Most High;
To declare Your lovingkindness in the morning,
And Your faithfulness every night. Psalm 92:1-2