Sunday
Annie had a really good day today. She practiced standing 4 times, worked on her noisy cause & effect toys, read a couple of books, listened to her favorite music, and finished the day with a long walk around the block. She's weaned off of one of the sleep medicines (and still sleeps at night) and we're working on weaning off a day-time agitation med, because she is more able to console herself by sucking her fingers, or holding a toy. She also is using her left hand to grab things (like her g-tube) and put them in her mouth. And she is more comfortable sitting up. All in all more active and purposeful in her movements. The first week home has been nervewracking for us, but full of progress for her!
Please pray for her speech to come back (SOON), and to continue getting stronger in sitting, standing, and reaching for things. The PT says her job is "play" and we need to get her back doing her job.:)
Also--I bought some rice cereal at the store for her to practice eating again. Most tastes are too strong for her now that she hasn't eaten in 2 months, so I thought we'd start back at the beginning. Pray that she wants to eat and not freak out about having food in her mouth. Little things we take for granted, you know?
Thanks!
Jean