The north wind doth blow and we shall have snow...
It's pretty windy outside tonight. I always appreciate when the wind does my leaf raking for me.
Big brother Jack and I took Annie down to Children's yesterday for her rehab checkup. After a kid goes through inpatient rehab, the doc and therapists like to see how things are going 3 months after discharge. If you remember, we were there on the rehab floor for a month from May 15 through June 8. I think everyone was happy to see Annie's progress since then, and Dr. Jaffe seemed pretty impressed with her attention and awareness. It's encouraging to hear people who haven't seen her in awhile comment on her improvement. I told the doc that my blogging buddies have been praying their guts out, and that's why she's doing so well.
So far this week, she's had maybe one or two head drops in 3 days. Yesterday I didn't see any; today I didn't see any, but Olivia did. Bottom line, though--the head drops are dramatically reduced. Because of that, and the fact that the new seizure med is working so well, and God is healing her, she is much more alert, interactive, and vocal. She was playing with a switch toy today at school, placing both hands on it and activating it repeatedly. She played with her xylophone piano at home tonight with both hands, intentionally and repeatedly. She was playing with her hair with her left hand, and rubbing her eye, and scratching her ear. Just normal movements I haven't seen her do in almost 9 months.
Also--we got her electrolytes checked again on Tuesday, and they're back to within normal range. We'll be following that closely every week for awhile. The bad news today, though, is that Annie's blood pressure is high again. Please pray that it comes down and stays down.
Here's a short prayer request list to post on your dashboard:
1. Please pray that she sleep through the night. (She has two night's in a row!)
2. Lower blood pressure
3. Normal electrolytes
4. No head drop seizures
5. More facial expression!!!
6. Increased use of hands and arms. (If she can start using her hands and arms, she could begin using a walker.)
7. Talking, talking and more talking. WORDS!!
Thanks again for listening and praying. I am indebted to you guys every day.
Jean
For since the beginning of the world
Men have not heard nor perceived by the ear,
Nor has the eye seen any God besides You,
Who acts for the one who waits for Him. Isaiah 64:4